Breastfeeding with Sjögren's Syndrome

Breastfeeding while managing Sjögren's Syndrome, an autoimmune disorder characterized by dry eyes and dry mouth, can introduce specific challenges for mamas. Sjögren's Syndrome may also affect other parts of the body, including the glands responsible for producing saliva and tears, and potentially those involved in milk production. Understanding these challenges and how to navigate them can support a successful breastfeeding journey.

Understanding Sjögren's Syndrome and Breastfeeding

Sjögren's Syndrome primarily impacts your body's moisture-producing glands, which can lead to discomfort and difficulties in daily activities. For breastfeeding mamas, the key concerns often revolve around hydration and the potential impact on milk production.

Breastfeeding Challenges for Mamas with Sjögren's Syndrome

• Hydration: Maintaining adequate hydration is crucial, as Sjögren's can exacerbate feelings of dryness, affecting both comfort and milk supply.
• Milk Production: There is no research to indicate that Sjögren's Syndrome directly affects milk production; however, any autoimmune disorder can potentially impact lactation through indirect effects on the body, such as fatigue and overall health.
• Comfort: Dryness, particularly of the mouth and eyes, can make the breastfeeding experience uncomfortable.

What Mamas Should Watch For

Enhancing Hydration

• Increase fluid intake: Drinking plenty of water and staying well-hydrated is essential to support milk production and manage symptoms of dryness.
• Use saliva substitutes: If dry mouth is a significant issue, consider using saliva substitutes or sugar-free candies to stimulate saliva production, making speaking and swallowing more comfortable.

Supporting Milk Production

• Monitor milk supply closely: Keep an eye on signs of adequate milk intake in your baby, such as weight gain and diaper output. If concerns arise, consult with an IBCLC for support.
• Nutritional support: Ensure you're getting a balanced diet rich in nutrients to support your overall health and milk production.

Managing Comfort

• Eye care: Use artificial tears or other prescribed treatments to manage dry eyes, especially important during long feeding sessions or if you're fatigued.
• Oral care: Regular dental check-ups and good oral hygiene can help manage the effects of dry mouth, protecting your teeth and gums.

When to Seek Medical Advice

• If you're struggling with symptoms of dryness that significantly impact your daily life or breastfeeding experience.
• If you notice a decrease in your milk supply or if your baby is not gaining weight adequately.
• If you experience increased fatigue, joint pain, or other new symptoms that could indicate your Sjögren's Syndrome is not well-controlled.

Closely Related Issues

Sjögren's Syndrome may coexist with other autoimmune disorders, such as rheumatoid arthritis or lupus, which can also impact breastfeeding and overall health. It's important to manage these conditions collectively to support your breastfeeding goals.

IBCLC-Specific Advice for Mamas with Sjögren's Syndrome

• Collaborate with an IBCLC: They can provide targeted advice to overcome breastfeeding challenges, from positioning to ensuring adequate milk transfer.
• Integrate care strategies: Work with your healthcare team to align your Sjögren's Syndrome management with breastfeeding, ensuring treatments are safe for both you and your baby.
• Self-care is crucial: Managing an autoimmune disorder and caring for a newborn is demanding. Prioritize self-care to maintain your health and well-being.

Breastfeeding with Sjögren's Syndrome may require extra steps and considerations, but with the right support and strategies, it can be a rewarding experience. Remember, every mama's journey is unique, and seeking help and support is a sign of strength. You're not alone, and resources are available to help you navigate this special time with your baby.

Sources

• https://www.e-lactation.com/en/maternal-sjogren-syndrome-pr/
• https://mariebiancuzzo.com/2021/09/24/7-questions-to-ask-about-autoimmune-diseases-and-breastfeeding/